Newsgroups

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Note: Our primary advice to those new to the newsgroups is to lurk (read the group for awhile) before you post your first message, so you get an idea of what types of messages are welcomed by the group--but don't be so afraid that you wait forever!

Not everyone is able to "click" on newsgroup links below and have their newsgroup reader open up and work fine! Some of us with touchier software need to go to the program where we read newsgroups and then select the group off of the list of available groups. Don't forget that not all the newsgroups are visible to every internet service provider. If you can't get to a group you want, you can contact your service provider to see if they will add it, or view the group in DejaNews.

This is also one of the reasons we created the Message Board--so you can post messages to each other and to us right here! (please, POST a message...!)

alt.support.lupus

 

alt.education.disabled

alt.government.ssdi-benefits.moderated

alt.health.hmo

alt.med.allergy, alt.support.food-allergies

alt.med.fibromyalgia

alt.support

A general-purpose support group. Anything goes in here.

alt.support.amputee

alt.support.anxiety-panic

While there are people with rheumatic diseases who, especially while seeking diagnosis, are often misdiagnosed with these problems, there are others who genuinely suffer from them along with rheumatic disease.

alt.support.arthritis , misc.health.arthritis

Newsgroups for persons with any arthritis-causing condition.

"ASA Bios" -- Web site with biographies of some of the regulars on alt.support.arthritis!

alt.support.arthritis.risg-spondy.info

Newsgroup for spondylarthropathies, started by Reiter's Syndrome and Anklyosing Spondylitis Information and Support Group

alt.support.arthritis.spondyloarthro.moderated

Same as above but this group is moderated

alt.support.big-folks, soc.support.fat-acceptance

These groups can be helpful to those suffering from obesity due to steroids (i.e. prednisone), inactivity due to illness, etc. and experiencing the social and cultural effects

alt.support.chronic-pain

alt.support.crohns-colitis

alt.support.depression, soc.support.depression.treatment

Many people with lupus suffer from depression due to the difficulties of living with a rheumatic disease, biochemical changes in the brain, and/or medications like prednisone that can cause depression.

alt.support.disabled.caregivers

alt.support.domestic-violence

Unfortunately chronic illness is one of many types of stresses that can become a trigger for (but NOT cause) spousal abuse

alt.support.headaches.migraine

Many people with lupus suffer from migraine headaches

alt.support.hearing-loss

alt.support.heart-defects

alt.support.hypermobility

alt.support.ibs

For discussion and support for people coping with Irritable Bowel Syndrome.

alt.support.inter-cystitis

alt.support.jaw-disorders

Many people with rheumatic diseases have problems with the joints in their jaw.

alt.support.kidney-failure

alt.support.marfan

alt.support.myasthe-gravis

alt.support.ocd

Anecdotal evidence has raised the question as to whether lupus is related in any way (e.g., genetically?) to obsessive compulsive disorder (OCD). The SB Rheumatic Diseases Group has taken no position on this issue, but we are happy to provide the link to this group for discussion of OCD issues.

alt.support.osteogenesis.imperfecta

alt.support.ostomy

alt.support.pulmonary

Persons with lupus, rheumatoid arthritis, and some other rheumatic diseases can develop pulmonary (lung) problems

alt.support.rsd

alt.support.scleroderma

alt.support.skin-diseases

alt.support.skin-diseases.psoriasis

alt.support.skin-diseases.vitiligo

alt.support.sleep-disorder

Many people with fibromyalgia, chronic pain, depression, and medication side effects have trouble with their sleep and sleep patterns.

alt.support.thyroid

Some people with rheumatic disease develop Hashimoto's thyroiditis, Grave's disease, and other thyroid problems.

alt.support.tinnitus

This group is for discussion and support for people who--for neurological, arthritic, vascular, or other reasons--have problems with noises in their ears.

misc.handicap

For persons coping with any disability.

misc.health.alternative

sci.med

For discussions on medical issues. Many doctors, specialists, and other medical practitioners are known to hang out here.

sci.med.cardiology

For medical discussions pertaining to heart disease.

sci.med.diseases.lyme

sci.med.diseases.osteoporosis

sci.med.immunology

For discussion on the science of immunology (fairly technical)

sci.med.nursing

sci.med.nutrition

sci.med.pharmacy

sci.med.vision

Some people with rheumatic diseases experience related visual problems. This group is for medical discussion of vision problems.

talk.politics.medicine

Note: if when using newsgroups or your e-mail you see a unsolicited and often off-topic messages (some common examples: pornography! make money fast! etc.), they may be "spam". To learn about spam, and/or what to do about it, click here.

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