Hot Off the Press!

This page tells you what's going on so you can be informed and...
hopefully...
get involved!

For resources to assist you in learning how to respond to action alerts, see our Responding to Alerts page.

 

For employment, financial, insurance and/or other disability-related information and coping strategies--go to the Advocacy Resources

 

If you can't find answers to your questions...
please feel free to e-mail us .

 

Web Sites with Many Important & Current Alerts!

 

We've put some for you here. There may be others at some of the resources on our Advocacy Resources page. Suggested additions to this section appreciated; please e-mail us at sblc@silcom.com

 

Bazelon Center for Mental Health Law

This site is a valuable resource for frequently updated action alerts on issues important to persons with any chronic illness or disability

Families USA

Excellent source for alerts on health care issues

HandsNet

Justice for All

Alerts on many disability-related topics; can sign up for a mailing list also

LRM's Home Page

An experienced disability advocate's resource and alerts page

National Council on Disability

Read a sample of alerts and sign up for their mailing list

Search for more info about specific legislation!

 

California Home Page

California Legislative Bill Search Site

California Voter Foundation

League of Women Voters of California

THOMAS--U.S. Federal Legislative Information

U.S. House of Representatives

The White House

Awareness Days, Weeks, and Months for the Rheumatic Diseases

Some special times to advocate for the rheumatic diseases are during designated awareness events. Many times these commemorative periods are associated with special events, such as patient and public education programs. Volunteers are often needed to distribute publicity, and this is an excellent time to contact and inform your legislators about issues you face dealing with a rheumatic disease, caring for someone with an RD or treating patients with RDs (for example, government allocations for research funds, access to health care, health insurance, managed care, taxes, employment concerns, Americans with Disabilities Act, and disability program stuff!)

Often these awareness are scheduled at the same time or near the same time on a yearly basis. Click on the links for more information. Please let us know of additions or links we should add to the following list:

March 2 - 8, Juvenile Arthritis Awareness Week

April, Sjogren's Syndrome Awareness Month

May 12, Fibromyalgia Awareness Day

May, Arthritis Month

October, Lupus Awareness Month

Return to the Lupus & Rheumatic Diseases Main Menu

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